New England Carcinoid Connection, Inc.

Neuroendocrine Patient/Caregiver Conference

Saturday, November 4, 2017

8:00 a.m. - 5:00 p.m.

Boston, Massachusetts

**NOTICE TO ATTENDEES: The Conference will be held on the third floor of the Yawkey Building located on the Dana Farber campus at 450 Brookline Avenue; Boston, Massachusetts (Phone: 617-632-3000). If traveling by car, enter the underground parking garage on Jimmy Fund Way, take a parking ticket, and then take the "Patient" elevators (Note: Not the "Staff Elevators") up to the third floor. Registration will be in the Cutler Art Gallery. Volunteers will be there to direct you. The main portion of the Conference will be held in the Lavine Dining Pavilion.**

The New England Carcinoid Connection, Inc. will be hosting its 5th Patient/Caregiver Conference featuring presentations by several doctors that are experts in their fields, interactive workshops, Question & Answer periods, and informational literature.

The cost to attend is $25 per person. A continental breakfast as well as lunch will be included.

Click here for registration form to print and mail to NECC's PO BOX

The location will be at the Dana Farber Cancer Institute in Boston, Massachusetts. Parking will be free or this event. Take a ticket as you enter the garage & instructions will be given during the event on how to validate.

A block of rooms has been reserved at the Holiday Inn Boston-Dedham, 55 Ariadne Rd, Dedham, MA 02026 The room rate is $126/night. Guests may call the hotel directly when making their reservations at 781-329-1000 and mention the Group Block. You may also go to the hotel website at www.holidayinn.com/bos-dedham, type in the date of stay, and enter the Group Booking Code NEC or click on the following link: https://www.holidayinn.com/redirect?path=hd&brandCode=hi&localeCode=en&regionCode=1&hotelCode=BOSDH&_PMID=99801505&GPC=NEC&viewfullsite=true

REGISTRATION DEADLINE HAS BEEN EXTENDED TO OCTOBER 20, 2017.

(Please email jennifer.orourke@aol.com if the deadline has passed, but you still wish to attend)

AGENDA

8:00 am - 8:45 am Registration / Light Breakfast

8:45 am - 9:00 am NECC Welcome

9:00 am - 9:15 am Introductions

9:15 am - 9:45 am Medical Management of Advanced Neuroendocrine Tumors

Speaker: Dr. Jennifer Chan

9:45 am - 10:15 am Surgical Approaches for Neuroendocrine Tumors

Speaker: Dr. Tom Clancy

10:15 am - 10:30 am Break

10:30 am - 11:00 am Liver Directed Therapy for Neuroendocrine Tumors

Speaker: Dr. Matthew Schenker

11:00 am - 12:00 pm Workshop Session #1 (Select 1 workshop from choice of 4)

1A Caregivers

Facilitator - Dave Hawkins

1B The Importance of Nutrition to the Neuroendocrine Survivor

Facilitator - Em E. Biever, MS, RD, LDN

1C The Rarest of the Rare: Lungnoids & Pheochromocytoma / Paraganglioma

Facilitator for lung portion - Dr. Robert Ramirez

Facilitators for the Pheochromocytoma / Paraganglioma portion -

Dr. Ronald Lechan, PhD

Dr. Arthur S. Tischler

1D Pain Management & Palliative Care

Facilitator - Dr. Andrea Enzinger

12:00 pm - 1:15 pm Lunch Buffet of varied food and beverages included in registration fee

12:30 pm - 12:45 pm Luncheon Speaker:

Ron Hollander - Executive Director of the NET Research Foundation

1:15 pm - 2:00 pm Nuclear Medicine & NET: New Imaging Techniques & PRRT

Speaker: Dr. Heather Jacene

2:00 pm - 2:30 pm Role of Genetic Screening in Neuroendocrine Tumors

Speaker: Dr. Kim Perez

2:30 pm - 2:45 pm Break

2:45 pm - 3:45 pm Workshop Session #2 (Select 1 workshop from choice of 4)

2A Carcinoid Syndrome

Facilitator - Robin Sommers, DNP, ANP-BC, AOCNP

2B Insurance: Advocating for your Treatments

Facilitator - Demian Fontanella - General Counsel, State of Connecticut: Office of the Health Care Advocate

2C The Role of Exercise to Combat Cancer-related issues

Facilitators - Laura Gilbert, Prevention Wellness Coordinator

& Leslie Schofield, Certified Personal Trainer

2D Financial Planning for Chronic Illness

Facilitator - Jennifer O'Rourke, CPA (MA,RI)

3:45 pm - 4:15 pm Closing Presentation: Research Updates & The Future

Speaker: Dr. Matthew Kulke

4:15 pm - 4:45 pm Q&A Period

4:45 pm - 5:00 pm Wrap-up: Complete surveys, Announce Raffle Winner(s)

Featured Speakers

Matthew H. Kulke, md, mmsc

Dr Kulke is director of the Neuroendocrine and Carcinoid Tumor Program at Dana-Farber and a professor of Medicine at Harvard Medical School. Kulke has led numerous clinical trials and translational studies in the neuroendocrine tumor field. A frequent author in the field, he currently serves on the gastrointestinal cancer committee for the Alliance for Clinical Trials in Oncology, and the advisory board for the European Neuroendocrine Tumor Society. He is chair of the North American Neuroendocrine Tumor Society, and also chairs the neuroendocrine tumor guidelines panel for the National Comprehensive Cancer Network.

Jennifer Chan MD, MPH

Dr Chan is clinical director of the Neuroendocrine and Carcinoid Tumor Program at Dana-Farber and an assistant professor of Medicine at Harvard Medical School. Chan has broad expertise in the treatment of patients with neuroendocrine tumors. In addition to her clinical practice, she has lectured widely and published numerous articles on treatment approaches for patients with pancreatic neuroendocrine and carcinoid tumors. Chan has played a leading role in the development of novel neuroendocrine tumor therapies, and has served as the principal investigator of several investigator-initiated clinical trials. She serves on the executive committee of the North American Neuroendocrine Tumor Society and on the Neuroendocrine Tumor Task Force of the National Cancer Institute.

ROBERT RAMIREZ, DO, FACP

Dr. Ramirez will be leading the lungnoid portion of the "Rarest of the Rare" workshop at 11 a.m.

Dr. Ramirez is board certified in medical oncology and internal medicine. He is a Fellow of the American College of Physicians (FACP) and a member of American Society of Clinical Oncology (ASCO), International Association for the Study of Lung Cancer (IASLC), and the North American Neuroendocrine Tumor Society (NANETS).

He has gained recognition as a specialist in pulmonary NET disease through his clinical and research work. He has appeared at numerous US and International conferences on NET & general lung cancer. In addition, he has multiple peer reviewed publications, is active in clinical trial design, and provides training to fellows, residents, and medical students

Per Dr. Ramirez, he has “a particular interest in lung cancer and specifically all forms of neuroendocrine lung tumors ranging from DIPNECH to small cell. This is an under represented portion of neuroendocrine tumors not only in research but in general awareness.”

Thank you to the NET Research Foundation for supporting the travel of this speaker.

Matthew P. Schenker, MD

Associate Radiologist

Brigham and Women’s Cancer Center Center for Gastrointestinal Cancer

Assistant Professor of Surgery, Harvard Medical School

Dr. Schenker received his MD from University of Pennsylvania School of Medicine in 2001. He then completed his residency in Diagnostic Radiology at Brigham and Women's Hospital in 2006 and Interventional Radiology fellowship at Brigham and Women's Hospital in 2007. He is currently an assistant professor of radiology at Harvard Medical School, Dana-Farber Cancer Institute and Brigham and Women’s Hospital.

Kimberley Perez, MD

Physician

Center for Gastrointestinal Oncology

Department of Medical Oncology

Instructor of Medicine, Harvard Medical School

Dr. Perez is a member of the DF/HCC Gastrointestinal Oncology and Cancer Genetics and Prevention disease centers. She received her undergraduate training at Georgetown University in Washington DC, and received her MD from George Washington University in Washington DC. She completed her residency and fellowship training at Rhode Island Hospital in 2010. After completing her fellowship, she joined the medical faculty at Warren Alpert School of Medicine at Brown University and served as a Gastrointestinal Oncologist at the Comprehensive Cancer Center at Rhode Island Hospital. She joined the faculty at Dana-Farber Cancer Institute in 2015 and is currently an Assistant Professor of Medicine at Harvard Medical School and Dana-Farber Cancer Institute.