NET Cancer Foundations
Neuroendocrine tumors (NETs) present numerous complex clinical problems. Due to their relatively rare occurrence, research and patient care guidelines since the 1990s have been lacking. As a result, the European Neuroendocrine Tumor Society was founded in 2004 and the society members, currently numbering nearly 1,200, bring a variety of expertise from such fields as oncology, pathology, radiology, nuclear medicine, endocrinology, surgery and gastroenterology to ENETS.
Neuroendocrine tumors, known as NET, are a rare type of cancer. If you have been diagnosed with a gastrointestinal NET (carcinoid), pancreatic NET, lung NET, or have questions about neuroendocrine tumors in general, you have come to the right place – The NET Alliance.
The NET Alliance™ and Novartis Oncology continue their commitment to improving knowledge and management of neuroendocrine tumors, and empowering patients to be more informed advocates.
The mission of this foundation is to increase awareness and educate the general public and healthcare professionals regarding carcinoid and related neuroendocrine tumors (NETs), to support NET cancer patients and their families, and to serve as patient advocates.
NCAN has produced nearly 40 conferences both national and regional around the country. With these conferences, we keep patients up-to-date on information impacting the decisions made regarding their care, including new diagnostics and treatments available and upcoming.
The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers
The Healing NET Foundation was founded by individuals with a common desire to bring neuroendocrine cancer from the obscurity of the “cancer that Steve Jobs had” to a level of understanding that neuroendocrine tumors are very treatable forms of cancer; many patients can live long lives of high quality. We understand it first-hand, as physicians or as patients.
NANETS is a medical society established by healthcare professionals dedicated to advancing the field of neuroendocrine tumor (NET) disease management. Each year, NANETS brings physicians, researchers, allied healthcare providers and medical students together through its international symposia, regional medical conferences and publications focused on neuroendocrine research and education. NANETS Annual Symposium is the largest professional NET disease meeting of medical professionals in North America.
Patient Advocate Foundation professionals directly intervene on behalf of more than 80,000 patients each year that request our services, enabling them to access prescribed healthcare services and medications, overcome insurance barriers, locate resources to support cost of living expenses while in treatment, evaluate and maintain health insurance coverage and better manage, or reduce, the out-of-pocket medical debt associated with their illness.
Founded in 2012, “One Inning at a Time Foundation’s” (OIAAT) goal is to educate the public and the medical profession about Neuroendocrine Tumor (NET) cancer and it’s prevention by early detection, and prompt, effective treatment. The mission of OIAAT is also to help maintain the quality of life, to promote healing, and to empower clients and families to be active participants in their fight against NET cancer as they approach this disease “One Inning at a Time”.
NET Cancer Web Sites
A Pheo Para Trooper is someone who is passionate about fighting pheochromocytoma and paraganglioma. Our goal is to empower and support patients while contributing anything we can to finding a cure for these diseases. If you are a patient, friend, or a family member of a patient, we hope you will join us in this important mission.
Walking With Jane is dedicated to killing the cancer that took Jane Dybowski from us far too soon. Our goal is to provide one-stop access to the latest information about Neuroendocrine Cancer, Neuroendocrine Tumors and Carcinoid Syndrome research, treatment, and events in support of patients, caregivers, physicians, and research and charitable efforts.
In this blog, Ronny discusses various aspects of his cancer, his treatment, and his daily life in terms of changes he had to make.
Factual, educational and the occasional pinch of humour, Ronny aims to put a positive spin on his life. He also uses the blog to spread awareness of this unusual, less common and complex disease including any related issues. He is passionate about moving Neuroendocrine Cancer into mainstream knowledge circles. He also occasionally blogs about other cancers in the news and related general cancer issues.
Raising awareness of neuroendocrine cancers around the world
General Cancer Organizations
To provide a safe, nurturing site for all Caregivers with emotional and spiritual support.
To provide a vast amount of resources both online and off-line for Caregivers.
ACOR is a unique collection of online cancer communities designed to provide timely and accurate information in a supportive environment. It is a free lifeline for everyone affected by cancer & related disorders.
Cancer.Net provides timely, comprehensive information to help patients and families make informed health care decisions. Cancer.Net is supported by the Conquer Cancer Foundation.
The American Cancer Society is a nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem.
Lexicon Announces The Launch Of Aboutcarcinoid.com To Provide Carcinoid Syndrome Disease Education To Patients, Caregivers And Physicians
Programs in NET Cancer and Carcinoid Tumors
